Author: Pastor Reno

Spoke with Bro. Bob this morning and he said that Mary is having a good day today.  Last night she didn't have a fever and the head-to-toe rash that she has is getting better.  She is still having to contend with the sores in her mouth, but they are treating that.  She is still needing to receive blood and platelets pretty regularly and the doctors are hoping to be able to test her bone marrow soon.   Originally, they were looking at testing on the 7th, but they have given them a window out until the 11th for that.  Prayers are that the chemo and other drugs they have been giving Mary will be working on the Leukemia, if not,...

As of last night, Mary was still struggling as she is receiving her treatments.  With all of the swelling in her organs, her spleen seems to be giving her particular trouble.  The doctors aren't sure why, but she has been receiving pain meds and other things to allow her to rest.  Another concern is that her fevers have spiked again.  This usually happens after the chemo treatments finish, but it has begun earlier for some reason.  Another new development is that she now has a rash from the top of her head to the bottom of her feet, most likely a reaction to the drugs.  Another possibility perhaps, is that with her immune system compromised, she is now manifesting an...

Mary has been on the chemo now since Friday afternoon and it is making her extremely sick.  She had to receive more blood and platelets on top of that yesterday.  The chemo is causing a great deal of pain and she pretty much all of the other side effects that chemo treatment brings.  Bro. Bob stated that they have her sedated, but the pain is too much.  She just lays there in a fetal position and they try to get the nausea under control.  There was a moment of levity on the phone when he was explaining that he doesn't do well with vomit and that he has to keep a bucket going for him too.  Dawn is on her...

After a difficult night of fighting fevers and then being treated for some kind of infection, the doctors told Mary on Thursday afternoon that she has a type of Leukemia that responds well to chemo.  Of course with hers being so far along, that poses some issues.  Her chemo treatments have been put off as she waited for these test results and because of the fevers, and need for blood transfusions.  This news from the doctor is good news and has lifted Bob and Mary's spirits.  They decided on attempting to start the chemo on Friday. Thursday night was another hard night for her, with temperatures reaching 104 degrees and receiving more blood.  She is exhausted, but they are starting the...

As many of you know, Bob & Mary Johnston have come off of the field temporarily due to Mary having Leukemia.  She has been sick for some time now and following some testing and a diagnosis in the Dominican Republic, they decided to come back.  She was too weak to travel so she received several transfusions and once she was able to they got off the plane and headed straight to Barnes Jewish Hospital in St. Louis, Missouri.

I had been waiting for the results from a bunch of blood tests where the doctors were checking to see if anything else was attacking my kidneys, and they all came back negative or normal.  The plan they have for me now is to preserve my kidney function for as long as possible and to monitor the protein leak and kidney function with blood and urine tests. I will not be going on any medications until the protein level changes or I become symptomatic.  I have to find some new pain killers other than NSAIDS, and find some "granola" ways of keeping inflammation under control.  My diet will remain a low salt, low fat, low protein, low fun one with keeping...

Well I went today to see a Nephrologist in Seattle.  I had some more blood tests among some other things, and got to spend quite a bit of time with him.  Based on my medical history and the tests thus far, here are today's conclusions: I have been diagnosed with two things.  One is what is called "thin basement membrane disease".  This disease allows blood to leak into my kidneys, and is mostly benign with a small percentage of people having progressing problems from there.  My other "possible" problem is "iGa Nephrothapy " -  this is a kidney disorder that occurs when IgA—a protein that helps the body fight infections—settles in the kidneys. After many years, the IgA deposits may cause the kidneys to leak blood and sometimes protein in the urine. While 25% of adults with iGa develop end-stage renal failure, if this is what I have, I increase the percentage due to the fact the TBMD is leaking blood and protein into the kidneys too.  If you wonder what these things are, or want more information, you can google it (been talking about it all day...kinda don't want to anymore).

I wanted to post a thank you to all of you who have been praying for me the last couple of weeks.  I also wanted to post what has been going on and will update the blog when I find anything else out or have any procedures.  Here is what has been going on... The men in my church wanted me to increase the life insurance that I have, so I had my agent set me up with another policy and order the physical exam.  After the labs got back, the insurance broker sent me a letter indicating that my insurance would be "rated" because of a high microalbumin/creatinine levels in my urine sample.  I thought this was odd, so I asked my doctor to run labs to prove them wrong.  The labs the doctor ran came back worse than the insurance ones though.